Grief is not all the pain it appears to be. Grief as I have
come to know it, is also an extraordinary opportunity to experience and see
close up the suffering from clinging in its most extreme form. This is my
mother’s parting gift to me.
Yesterday, when I arrived, I found her sitting at her usual
table in the back of the dining room. Remembering our intense connection from
two weeks ago, I expected at least an acknowledgment, a gaze of recognition, a smile.
I was met instead with a blank stare. I sat by her side and waited. “Bonjour
Maman. C’ est Margot, ta fille.” She looked up, gave me a look, and closed her
eyes again. Aides had laid out dinner in front of her, and I was to help
her. It took forty five minutes for her
to get one serving of the French version of Ensure down. I followed the aides
as they wheeled her back to her room, and I kept her company as she laid
resting in bed. Giving her kisses, stroking her forehead, reaching out for her
shriveled hand did not produce the usual joy in her. Rather, it became clear
that she wanted to be left alone. She is withdrawing from the world, I thought,
and she is letting me know.
My mother mostly wants to sleep, and sometimes drink a
little, that’s all. No more music, no more engagement, no more closeness, no
more food. This is in direct contrast to the mother I knew who loved singing so
much, and eating well, and being hugged and cajoled. That version of her no
longer exists, other than in my memories, thoughts about the past with no
relevance to the present conditions. Turning inside, I get in touch with the
pulling away and the hanging on from lingering grief. What we call love is
first and foremost attachment. The more we feel love, the tighter the bond, and
the more difficult it is to let go of the object of our love. My mother is
letting me experience what I first learned in words from Ayya Khema. True love
is purified from all attachment, and demands that we not burden the loved one
with the imposition from our clinging. It also requires that we reconcile with
the universal truth of impermanence, that all that is born must die. Last, we
must accept the not-self nature of our existence. The only thing that matters
at this moment is to give this person who I have been calling my mother, the space
to die at her own pace. Anything short of that is due to cause suffering for both she and
I.
We tend to make a big deal of death. Watching my mother gently
fade away, I am struck by the simple physical nature of end of life, same way I
felt when my daughters were born, only in reverse. We are born, we live, we
die, that’s all, and with each transition, we are given to a bunch a physical processes, of
entering, being in, and leaving the body. At some point, the body gets worn out
and starts shutting down. In the case of Alzheimer’s as with my mom, the end
phase stretches over many years, giving loved ones a chance to work with grief
and clinging not just once, but numerous times. One thing I have learned from
this process is the need to appreciate all that is given at any moment. It is
so easy focusing on what no longer is, as opposed to what still is. Before my
mother lost the ability to speak a month ago, I did not realize how much it
mattered to me that she be able to talk and respond still, even within the limited range of her late stage Alzheimer's narrative.
Now, treasuring the times sitting at her side and feeling her spirit, still flickering, and her breath also. I know soon there will be no life left at all.
So very perceptive and intimate Marguerite. May you find the strength you need...
ReplyDeleteI am very moved by your writing about your relationship with your mother as she travels this end stage of Alzheimer's disease. Thank you so much.
ReplyDeleteTu es tenue tendrement dans nos coeurs, Marguerite.
ReplyDeleteI am at the receiving end from a partly sick relative at home. I am deeply hurt and affected. Reading from your blog about your dear mother's illness & your care giving has given me a better perspective of what it is to care for the sick. Instead of running away from the situation, I will try my best to use this as an opportunity to serve. Thanks.
ReplyDeleteThanks, each one of you, for partaking in this journey. Thank you for your kindness. And anonymous one, I wish you best in your own travels down the path of sickness with your loved one.
ReplyDeleteI agree with everyone here. The power of your writing is the authenticity, the intensity, the truth, the vulnerability, the fears and finally the openness to learn and love and just be. Thank you, Marguerite, continued strength and love to you and your mother.
ReplyDeleteMichele
Thank you, Michele. I have always felt the gift of blogging to be in this authenticity of sharing each other's experiences.
ReplyDeleteMarguerite, you have become my home page these last weeks because of your openness in sharing your experience of suffering and loss. My mother passed away Wednesday morning from a long illness. As I stayed with her the last days and finally witnessed her last breath and watched the rapid changes of the body, I realized how conditioned we are to grasp and not let go. And yet it is that holding on that prevents us from the profound truth of impermanence which is what transforms our lives to one of compassion and a deeper way of living. May sorrow show me the way to compassion. Namaste.
ReplyDeleteLaurelle, thank you so much for sharing those last moments with your mom. And how much I can relate! Thank you. I feel it is almost taboo in our culture to talk about grief as a form of grasping. And yet, death is there as our ultimate teacher.
ReplyDelete